Patient- Generated Health Data to Predict Childhood Cancer Survivorship Outcomes

Launched by ST. JUDE CHILDREN'S RESEARCH HOSPITAL · Apr 18, 2022

Keywords

ClinConnect Summary

This clinical trial is focused on understanding how to better predict health problems in childhood cancer survivors. Many survivors face ongoing health issues due to their previous treatments, and this study aims to use information provided by the patients themselves—like their symptoms, activity levels, sleep patterns, and heart rates—to identify those risks more accurately. By doing this, researchers hope to improve the care and outcomes for these survivors.

To participate in this study, you need to be at least 18 years old, have been diagnosed with childhood cancer at least five years ago, and currently not be receiving any cancer treatments. You also need to have access to a smartphone that can connect to the internet. Participants will regularly provide information about their health through surveys, which will help researchers understand the long-term effects of childhood cancer treatment. If you or someone you know fits these criteria, this study could be a great opportunity to contribute to better health monitoring for childhood cancer survivors.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • ≥18 years of age at the time of study
• • Enrolled on SJLIFE
• • ≥5 years from initial diagnosis of pediatric cancer/malignancy
• • Currently not receiving cancer therapies
• • Access to web-enabled smartphone
• Exclusion Criteria:
• • Known severe neurocognitive impairment (e.g., estimated intelligence score \[FSIQ\] \<70), which requires proxies to complete daily symptom and PRO surveys;
• • \<3rd-grade reading level or not able to communicate in English;
• • Currently pregnant or reports planning to become pregnant in the next two years;
• • Lack of access to web-enabled smartphone, or not able to use/access internet from the device.