Natural History Protocol for Movement Disorders

Launched by NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE (NINDS) · Jun 9, 2022

Keywords

ClinConnect Summary

This clinical trial is studying movement disorders, which are conditions that cause unusual movements in the body, such as shaking or slow motions. The goal is to understand how these disorders develop in both individuals and their family members, which could help improve treatments in the future. The study is looking for children and adults aged 2 and older who have a movement disorder or have a family member with one.

Participants will visit the NIH clinic for a single appointment where they'll have a physical exam and may undergo some tests, like blood tests and imaging scans, to help researchers learn more about their condition. Family members may also participate and will undergo some similar tests. It's important to note that participants will not receive any new treatments during this study. The researchers hope to include up to 4,000 people in this study to gather valuable information.

Gender

ALL

Eligibility criteria

• * INCLUSION CRITERIA:
• In order to be eligible to participate in this study, an individual must meet all of the following criteria:
• • Stated willingness to comply with all study procedures and availability for the duration of the study
• • Male or female, aged 2 and above
• * Either one of these:
• • Have or suspected to have a diagnosis of a movement disorder.
• • Family member of someone who has or is suspected of having a diagnosis of a movement disorder.
• • Ability of subject or Legally Authorized Representative (LAR) to understand and the willingness to sign a written informed consent document.
• EXCLUSION CRITERIA:
• An individual who meets the following criteria will be excluded from participation in this study:
• • -Being \< 2 years old.