The KidneyCARE (Community Access to Research Equity) Study
Launched by TUFTS MEDICAL CENTER · Aug 9, 2022
Trial Information
Current as of June 26, 2025
Recruiting
Keywords
ClinConnect Summary
The KidneyCARE Study is an important initiative aimed at improving the lives of people with chronic kidney disease (CKD), including those on dialysis and kidney transplant recipients. This study, organized by the National Kidney Foundation, focuses on gathering information from patients to help create better resources and improve healthcare for those affected by CKD. Participants will not need to take any medications or undergo additional tests; instead, they will simply share their personal health information and experiences through a secure online platform. This shared information will help researchers and healthcare providers understand the needs of patients better and develop resources that truly support them.
To be eligible for the study, participants must be 18 years or older, have a diagnosis of CKD (including those on dialysis or who have had a kidney transplant), and be willing to share their experiences. The study is currently active but not recruiting new participants, and anyone interested can access the NKF Patient Network online anytime at NKFPatientNetwork.org. It’s a great opportunity for patients to contribute to research that can lead to better care and support for themselves and others living with kidney disease. Participation is voluntary and free, making it an accessible way to make a difference in kidney health.
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • Patients with any stage of CKD, including kidney transplant recipients and patients on dialysis.
- • Age 18 years and above.
- • Willing to participate in the Study and complete the informed consent form and assent form (where applicable).
- • Able to participate in this Study, which initially will be in English and then eventually expand to other languages.
- • Patients affiliated with Geisinger Health System must have given their consent to Geisinger Health System IRB to be contacted for research projects.
- Exclusion Criteria:
- • Patient not diagnosed with CKD
- • Age below 18 years
- • Not willing to participate in the Study as well as unwilling to complete the informed consent form
About Tufts Medical Center
Tufts Medical Center is a leading academic medical institution located in Boston, Massachusetts, renowned for its commitment to advancing healthcare through innovative research and clinical trials. As a sponsor of clinical trials, Tufts Medical Center leverages its expertise in diverse medical disciplines to develop and test new therapies, enhance patient care, and contribute to the scientific community. With a focus on collaboration and rigorous methodologies, the center aims to translate research findings into practical applications that improve health outcomes for patients locally and globally. Its dedication to excellence is reflected in its partnerships with academic institutions, industry leaders, and healthcare organizations.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Danville, Pennsylvania, United States
Patients applied
Trial Officials
Kerry Willis, PhD
Study Director
National Kidney Foudnation
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported
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