Patients At Risk for Sensory Screening (HPARSS) to Enhance Sensory Deficit Screening in Childhood Cancer Survivors

Launched by WASHINGTON UNIVERSITY SCHOOL OF MEDICINE · Oct 13, 2022

Keywords

ClinConnect Summary

The HPARSS trial is a study aimed at improving the way we screen childhood cancer survivors for potential sensory problems, like issues with hearing or vision. Researchers at Washington University School of Medicine are looking to identify young patients who are at risk for these sensory deficits based on the treatments they received. By creating a special document called the HPARSS, they hope to help doctors prompt necessary screenings and follow-up care for these patients, ensuring they receive the support they need.

To join the study, participants must be between 7 and 17 years old, have been diagnosed with cancer before the age of 18, and have completed their cancer treatment (like chemotherapy or radiation) at least 6 months but less than 2 years ago. The study is currently recruiting participants, and it’s important to note that anyone actively undergoing cancer treatment or who has received specific types of therapy for sensory deficits in the past will not be eligible. If you or someone you know fits these criteria, participating in this study could help improve care for childhood cancer survivors by ensuring any sensory issues are identified and managed early.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Patients with a diagnosis of pediatric cancer (diagnosis at \<18 years of age)
• • Treatment including chemotherapy and/or radiation therapy
• • Completion of all cancer therapy for at least 6 months and less than 2 years
• • Followed in the Division of Pediatric Hematology/Oncology Program at the Washington University School of Medicine
• • Current age between 7 and 17 years of age (age where all of the screening tests are both valid and have been successfully performed by our group)
• • English speaking
• Exclusion Criteria:
• • Undergoing active cancer treatment
• • Patient under the care of the Late Effects Program at St. Louis Children's Hospital
• • Received previous diagnostic testing or rehabilitative therapy for a secondary deficit eligible for screening.
• • Parents and/or patient illiteracy
• • No contact with treatment team in the past two years
• • In foster care or without a legal guardian