The Experience of Screening for SCID
Launched by KING'S COLLEGE LONDON · Dec 6, 2022
Trial Information
Current as of January 21, 2025
Recruiting
Keywords
ClinConnect Summary
This clinical trial, titled "The Experience of Screening for SCID," is looking at how screening newborns for Severe Combined Immunodeficiency (SCID) affects families and healthcare providers. SCID is a serious condition that makes it hard for babies to fight off infections. The trial will gather insights from parents and health professionals at various hospitals where this new screening method is being tested. It will involve two main parts: one part will explore families' experiences from when they receive screening information until their child turns five, and the other part will involve interviews with health professionals about their experiences during the pilot program.
To participate in this trial, individuals must be at least 18 years old and able to understand the research's purpose. If a participant speaks a language other than English, a translator will be provided. The trial is actively recruiting participants, and it’s important to note that if a child passes away after joining the study, the research team will check with the parents to see if they still want to share their experiences. This study aims to better understand the impact of SCID screening on families and healthcare providers, which could help improve care for affected children in the future.
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • Participants must be at least 18 years of age. Participants must be able to understand the purpose and implications of the research study.
- • Where participants are speakers of languages other than English, the research team will arrange a translator.
- Exclusion Criteria:
- • Where a child dies after recruitment to the project the team will sensitively check whether the parents wish to continue participation to enable their views to be included.
About King's College London
King's College London is a prominent research institution renowned for its commitment to advancing healthcare through innovative clinical trials. With a strong emphasis on interdisciplinary collaboration, the college leverages its extensive expertise in medicine, neuroscience, and public health to conduct rigorous studies aimed at improving patient outcomes. As a sponsor of clinical trials, King's College London prioritizes ethical standards, participant safety, and scientific integrity, fostering an environment that encourages groundbreaking research and the translation of findings into clinical practice. Through its state-of-the-art facilities and a diverse network of researchers, the institution strives to address critical health challenges and contribute to the global body of medical knowledge.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
London, , United Kingdom
People applied
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported
Discussion 0
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