Evaluation of the EHPAD Caregiver/Pact & Pad Psycho-educational Program for Caregivers With an Institutionalized Parent

Launched by ASSISTANCE PUBLIQUE - HÔPITAUX DE PARIS · Dec 7, 2022

Keywords

ClinConnect Summary

This clinical trial is looking into a new support program designed to help family caregivers who have a parent living in an institution, such as a nursing home. Many caregivers experience a mix of emotions during this time, including feelings of sadness, guilt, and anxiety, which can affect their well-being and their relationship with their loved ones. The program aims to provide caregivers with information, training, and a space to discuss their feelings with other caregivers and professionals, helping them to better cope with this challenging situation.

To participate in the study, caregivers need to meet certain criteria. They must be at least 18 years old, have been providing care for their parent for at least six months, and have a parent who has been in an institution for less than 25 weeks. Caregivers should also be experiencing feelings of depression or anxiety and be willing to take part in at least five of the seven workshops offered. The program is currently recruiting participants, and it offers a supportive community where caregivers can learn and share their experiences.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Family caregivers defined according to the European charter for family caregivers COFACE: "the non-professional person who comes to the aid mainly, in part or totally, to a person dependent on his or her entourage, for activities of daily living. This regular help can be provided on a permanent basis or not and can take several forms, in particular: nursing, care, support for education and social life, administrative procedures, coordination, permanent vigilance, psychological support, communication, domestic activities. . Currently, these caregivers have an elderly relative living in an institution or in the process of institutionalization
• • Have been a caregiver for at least six months
• • Have a parent in an EHPAD for less than 25 weeks
• • The loved one is not at the end of life when the caregiver starts the program
• • Participate in at least five workshops out of the seven offered as part of the program.
• • Be of legal age (at least 18 years old)
• • Presence of depression or anxiety according to HAD
• • Be motivated to follow the program
• • Signature of consent.
• • Be affiliated with a social security scheme
• Exclusion Criteria:
• • Caregiver with a loved one living at home without institutionalization plans
• • Professional caregivers, former caregivers
• • Absence of depression and/or anxiety
• • Deceased relative
• • Have untreated diagnosed psychiatric disorders
• • To be suffering from proven cognitive disorders
• • Already benefit from another caregiver assistance program.
• • Patient under AME
• • Vulnerable people