Impact of a Community Based Engagement Program Focused on Adolescents With Epilepsy
Launched by MAKERERE UNIVERSITY · Dec 20, 2022
Trial Information
Current as of July 31, 2025
Not yet recruiting
Keywords
ClinConnect Summary
This clinical trial is focused on improving the lives of adolescents with epilepsy in Uganda. The main goal is to create a community program that helps young people and their families better understand epilepsy, reduce stigma, and improve overall health. Researchers will work closely with the participants and community members to design activities that are culturally relevant and scientifically sound. They will measure how these programs affect people’s attitudes and beliefs about epilepsy, using surveys to see if there is a positive change after the program is implemented.
To participate in this study, adolescents aged 10 to 18 who live in Wakiso district, Uganda, and have a confirmed diagnosis of epilepsy are eligible. Participants must be able to provide written agreement to take part in the study and have a caregiver who can consent on their behalf. Those who are interested will engage in various program activities aimed at raising awareness and reducing stigma associated with epilepsy. It’s important to note that this study is not yet recruiting participants, so there will be more details available once it officially begins.
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • Adolescent with epilepsy residing in Wakiso district
- • Between the ages 10-18 years
- • A resident of Wakiso district, Uganda for the previous six months
- • Confirmed diagnosis for epilepsy as per the International League Against Epilepsy definition
- • Provide written assent to participation in the study
- • With a caregiver willing to provide written informed consent as well as detailed history regarding them.
- • Willing to participate in all the required program activities with his/her caregiver
- Exclusion Criteria:
- • Adolescent with epilepsy residing in Wakiso district who
- • Does not have the time or interest to participate in the community engagement program
- • Has had exposure to a similar previous community engagement program
- • Is unable to fully understand what is required of him/her in the study and engage consistently throughout the whole community engagement program
About Makerere University
Makerere University, located in Kampala, Uganda, is a leading institution of higher learning and research that plays a pivotal role in advancing health sciences and clinical research in Africa. With a strong commitment to improving public health outcomes, the university engages in a wide range of clinical trials and health-related studies, focusing on addressing pressing health challenges in the region. Makerere University collaborates with various local and international partners to enhance research capacity, promote innovative solutions, and contribute to evidence-based healthcare practices, ultimately aiming to improve the quality of life for communities both locally and globally.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Patients applied
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported
Similar Trials