Impact of the Development of Pediatric Palliative Care
Launched by UNIVERSITY HOSPITAL, STRASBOURG, FRANCE · Dec 13, 2022
Trial Information
Current as of January 16, 2025
Recruiting
Keywords
ClinConnect Summary
This clinical trial is studying how pediatric palliative care can help children with primary brain tumors. Even with advancements in medicine, brain tumors are a significant cause of cancer in children, and managing their care can be complex, especially as they approach the end of life. The goal of this trial is to improve the quality of life for these children and their families by focusing on better symptom control and providing support during difficult times.
To participate in this study, children must be under 17 years old and diagnosed with a primary brain tumor. They should have passed away between 2009-2010 or 2019-2020 and have been treated in specific Pediatric Oncology departments in France. Importantly, parents or guardians need to have allowed the use of their child's medical information for research. If eligible, families can expect to contribute valuable insights that could enhance care for future patients facing similar challenges.
Gender
ALL
Eligibility criteria
- Inclusion criteria:
- • Patient less than 17 years of age
- • Suffering from a primary brain tumor
- • Died during the period 2009-2010 or during the period 2019-2020
- • Follow-up in one of the Pediatric Oncology departments participating in the study (Strasbourg, Besançon, Dijon, Nancy and Reims)
- • Absence of refusal expressed in the medical file by the parents or the holder(s) of parental authority concerning the reuse of the child's personal data for research purposes.
- Exclusion criteria:
- • Refusal expressed in the medical file by the parents or the holder(s) of parental authority concerning the reuse of the child's personal data for research purposes
- • Patient with a brain tumor secondary to another cancer
About University Hospital, Strasbourg, France
The University Hospital of Strasbourg, France, is a leading academic medical center renowned for its commitment to advancing healthcare through innovative clinical research and patient-centered care. As a prominent sponsor of clinical trials, the institution collaborates with a diverse range of healthcare professionals and research teams to explore cutting-edge therapies and treatment modalities. With state-of-the-art facilities and a multidisciplinary approach, the University Hospital of Strasbourg plays a pivotal role in translating scientific discoveries into effective clinical applications, contributing significantly to the advancement of medical knowledge and improved patient outcomes.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Strasbourg, , France
People applied
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported
Discussion 0
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