Impact of the Development of Pediatric Palliative Care

Launched by UNIVERSITY HOSPITAL, STRASBOURG, FRANCE · Dec 13, 2022

Keywords

ClinConnect Summary

This clinical trial is studying how pediatric palliative care can help children with primary brain tumors. Even with advancements in medicine, brain tumors are a significant cause of cancer in children, and managing their care can be complex, especially as they approach the end of life. The goal of this trial is to improve the quality of life for these children and their families by focusing on better symptom control and providing support during difficult times.

To participate in this study, children must be under 17 years old and diagnosed with a primary brain tumor. They should have passed away between 2009-2010 or 2019-2020 and have been treated in specific Pediatric Oncology departments in France. Importantly, parents or guardians need to have allowed the use of their child's medical information for research. If eligible, families can expect to contribute valuable insights that could enhance care for future patients facing similar challenges.

Gender

ALL

Eligibility criteria

• Inclusion criteria:
• • Patient less than 17 years of age
• • Suffering from a primary brain tumor
• • Died during the period 2009-2010 or during the period 2019-2020
• • Follow-up in one of the Pediatric Oncology departments participating in the study (Strasbourg, Besançon, Dijon, Nancy and Reims)
• • Absence of refusal expressed in the medical file by the parents or the holder(s) of parental authority concerning the reuse of the child's personal data for research purposes.
• Exclusion criteria:
• • Refusal expressed in the medical file by the parents or the holder(s) of parental authority concerning the reuse of the child's personal data for research purposes
• • Patient with a brain tumor secondary to another cancer