TSC Biosample Repository and Natural History Database
Launched by NATIONAL TUBEROUS SCLEROSIS ASSOCIATION · Jan 6, 2023
Trial Information
Current as of June 26, 2025
Recruiting
Keywords
ClinConnect Summary
The TSC Biosample Repository and Natural History Database is a clinical trial focused on collecting and storing samples like blood, DNA, and tissues from individuals diagnosed with tuberous sclerosis or lymphangioleiomyomatosis (LAM). These samples will help scientists conduct research and better understand these conditions. Additionally, the trial includes a Natural History Database that tracks how these diseases affect a person's health over time, gathering important clinical information either from past records or by following patients going forward.
Anyone diagnosed with tuberous sclerosis complex or sporadic LAM may be eligible to participate in this trial, regardless of age or gender. If you choose to take part, you can expect to provide samples for research purposes and contribute to a database that helps researchers learn more about these conditions. Your participation could play a key role in advancing knowledge and treatment options for others living with these diseases.
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • Diagnosis of tuberous sclerosis complex or lymphangioleiomyomatosis (sporadic LAM).
- Exclusion Criteria:
- • -
About National Tuberous Sclerosis Association
The National Tuberous Sclerosis Association (NTSA) is a leading organization dedicated to advancing research, education, and advocacy for individuals affected by tuberous sclerosis complex (TSC). Committed to improving the quality of life for patients and families, the NTSA collaborates with healthcare professionals, researchers, and industry partners to facilitate innovative clinical trials and promote the development of effective treatments. Through its comprehensive support programs and resources, the NTSA aims to raise awareness, foster community engagement, and drive progress in the understanding and management of TSC.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Boston, Massachusetts, United States
Iowa City, Iowa, United States
Cincinnati, Ohio, United States
Miami, Florida, United States
Saint Louis, Missouri, United States
Cleveland, Ohio, United States
Philadelphia, Pennsylvania, United States
Los Angeles, California, United States
Boston, Massachusetts, United States
Boston, Massachusetts, United States
Cincinnati, Ohio, United States
Birmingham, Alabama, United States
Denver, Colorado, United States
Iowa City, Iowa, United States
Montréal, , Canada
Boston, Massachusetts, United States
New York, New York, United States
Loma Linda, California, United States
Oakland, California, United States
Miami, Florida, United States
Chicago, Illinois, United States
Silver Spring, Maryland, United States
Roseville, Minnesota, United States
Memphis, Tennessee, United States
Dallas, Texas, United States
Houston, Texas, United States
Fairfax, Virginia, United States
Montréal, , Canada
Houston, Texas, United States
Patients applied
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported
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