Tourette Discrimination (TD) Stigma Scale

Launched by WAKE FOREST UNIVERSITY HEALTH SCIENCES · Jan 12, 2023

Keywords

ClinConnect Summary

This clinical trial, called the Tourette Discrimination (TD) Stigma Scale, is exploring the challenges faced by children and young adults with Chronic Tic Disorders (CTD), which includes Tourette Syndrome. The main goal is to understand how stigma and discrimination affect their lives. By gathering this information, the researchers hope to find better ways to support individuals with CTD in the future.

The study is currently looking for participants aged 8 to 30 who have been diagnosed with CTD by a doctor. If you are a parent, caregiver, or supporter of someone with CTD and you've been involved in their care, you can also take part. However, participants need to speak English and should not have certain conditions, like intellectual disabilities or psychosis, that might make it hard for them to understand the study. If you join the study, you can expect to share your experiences and insights, which will be valuable for understanding and addressing the stigma surrounding tic disorders.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • CTD Cohort
• • 1. Physician-confirmed diagnosis of CTD based on the Diagnostic and Statistical Manual for Mental Disorders-Fifth Edition (DSM-V) criteria
• • 2. 8-30 years old.
• • Parent/caregivers, supporters, medical providers, advocate cohort (s)
• • 1. Involved in the care of a child, youth or young adult with CTD
• • 2. The known person with CTD has had tics for more than a year at the time of screening
• Exclusion Criteria:
• • CTD Cohort
• Exclusion criteria:
• • 1. Non-English speaking
• • 2. Diagnosis of intellectual disability
• • 3. Diagnosis of psychosis
• • 4. Any other condition that, in the Principle Investigator's opinion, would limit the participant's (or parent's) ability to understand study measures.
• • Parent/caregivers, supporters, medical providers, advocate cohort (s)
• • 1) The known person with CTD has an intellectual disability or diagnosis of psychosis