Natural History of SMA
Launched by FONDAZIONE POLICLINICO UNIVERSITARIO AGOSTINO GEMELLI IRCCS · Mar 2, 2023
Trial Information
Current as of June 26, 2025
Recruiting
Keywords
ClinConnect Summary
This clinical trial, called the Natural History of SMA, is focused on understanding spinal muscular atrophy (SMA) by observing how the condition affects patients over time. Researchers want to gather important information about patients' daily functioning, care needs, and any side effects they may experience. The goal is to create a detailed record that can help improve treatment and care for individuals with SMA.
Anyone diagnosed with SMA can participate in this study, as there are no specific age or gender restrictions. However, those who are currently enrolled in other clinical trials cannot join this study. Participants can expect regular follow-ups, where they will share information about their health and experiences related to SMA. This trial is an opportunity to contribute to a greater understanding of SMA, which may lead to better care and support for everyone affected by this condition.
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • all patients
- Exclusion Criteria:
- • if enrolled in clinical trials
About Fondazione Policlinico Universitario Agostino Gemelli Irccs
Fondazione Policlinico Universitario Agostino Gemelli IRCCS is a leading research and healthcare institution based in Rome, Italy, renowned for its commitment to advancing medical science and improving patient care. As a prominent academic medical center affiliated with the Catholic University of the Sacred Heart, it integrates clinical practice, education, and research, fostering innovation in various fields of medicine. The foundation conducts a wide range of clinical trials aimed at developing new therapies and enhancing treatment protocols, with a focus on translational research that bridges the gap between laboratory discoveries and patient care. Its multidisciplinary approach and dedication to high ethical standards position it as a key player in the landscape of clinical research and healthcare improvement in Italy and beyond.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Rome, , Italy
Rome, , Italy
Genova, , Italy
Messina, , Italy
Milano, , Italy
Patients applied
Trial Officials
Eugenio Mercuri, MD
Principal Investigator
F Policlinico Gemelli IRCCS
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported
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