Caregiving While Black

Launched by EMORY UNIVERSITY · Mar 6, 2023

Keywords

ClinConnect Summary

The "Caregiving While Black" trial is focused on improving support for Black American caregivers who care for family members or friends with dementia. The goal is to update and test an online education program that helps these caregivers better manage their responsibilities and provide quality care. The study has two phases, and participants can take part in one or both phases if they are 18 years or older, self-identify as Black American, and are the main caregivers for someone living with dementia who is not in a nursing home or hospice care.

To join the study, caregivers must provide hands-on care multiple times a week and have access to the internet. Participants will learn valuable skills through the online course, which aims to enhance their caregiving abilities. It's important to know that those who are not able to give consent, are under 18, or have plans to move the person with dementia to an institution in the next six months are not eligible to participate. The trial is currently recruiting, and it offers a great opportunity for caregivers to gain resources and support in their important role.

Gender

ALL

Eligibility criteria

• Caregiver Inclusion Criteria:
• • 18 years or older
• • family member (or friend) who self-identifies as Black American and as the principal caregiver of a community-dwelling person living with dementia (PLWD), (not in hospice care) and who is the principal companion of that person during healthcare encounters;
• • provides some hands-on care multiple times a week;
• • has access to an electronic device and/or access to broadband internet; and
• • able to speak and understand English.
• • Caregivers are not required to be co-located with the care recipient.
• Exclusion Criteria:
• • Those who cannot provide consent,
• • are not yet adults (\<18 years of age),
• • prisoners, cognitively impaired adults,
• • has plans to relinquish caring responsibilities for PLWD or considering moving the PLWD to an institutional setting within the next 6 months, and
• • who are not able to clearly understand English.