Multi-Center Registry for ME/CFS

Launched by TECHNICAL UNIVERSITY OF MUNICH · Mar 20, 2023

Keywords

ClinConnect Summary

The Multi-Center Registry for ME/CFS study is focused on understanding a condition known as Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), which can affect people of all ages. This research aims to gather information about how common this condition is, the different ways it can affect individuals, and how it is managed in healthcare settings. By creating a large database of information, the study hopes to help with future clinical trials that could lead to better treatments for ME/CFS, especially in people who have experienced it after conditions like infectious mononucleosis and COVID-19.

To participate in this study, individuals must have a confirmed diagnosis of ME/CFS based on specific medical guidelines and provide informed consent. This means participants need to agree and understand the purpose of the study, and if they are minors, their guardians must also consent. The study is currently recruiting participants, and anyone who meets these criteria can contribute to important research that may improve the lives of those affected by ME/CFS in the future. Participants will have the opportunity to share their experiences and contribute valuable data that could shape future healthcare approaches for this condition.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • ME/CFS diagnosis (ICD-10 G93.3) based on internationally established criteria
• • Informed consent by patients and/or guardian(s)
• Exclusion Criteria:
• • No ME/CFS (ICD-10 G93.3)
• • No informed consent