Integrated Management of Atypical Parkinsonism: A Home-based Patient-Centered Healthcare Delivery Based on Telenursing (IMPACT Study)

Launched by FONDAZIONE I.R.C.C.S. ISTITUTO NEUROLOGICO CARLO BESTA · Mar 18, 2023

Keywords

ClinConnect Summary

The IMPACT Study is looking into a new way to improve care for patients with atypical parkinsonism conditions, such as Multiple System Atrophy (MSA) and Progressive Supranuclear Palsy (PSP). This study will use a method called telenursing, where specially trained nurses provide support and monitor patients from their homes. The goal is to see if this approach can enhance the quality of care, help patients feel better, and reduce complications like falls, thanks to better health education and communication.

To participate in this study, individuals must have a clinical diagnosis of MSA or PSP in any of its forms. However, those with advanced symptoms (rated at stage 5) or other serious health issues may not be eligible. Participants can expect regular check-ins with a parkinsonism nurse specialist who will help manage their care and provide guidance throughout the study. This trial is currently recruiting participants of all ages, and it aims to find effective ways to support patients living with these challenging conditions.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Clinical diagnosis of MSA or PSP in all their possible variants (MSA-P, MSA-C; PSP-RS, PSP-P, PSP-CBS, etc.) according to internationally validated criteria.
• Exclusion Criteria:
• • Hoehn and Yahr stage = 5 in ON phase
• • Clinical Frialty Scale (CFS) ≥ 8
• • Serious medical disorders that, in the opinion of the recruiting neurologist, may impair participation in the study