Strengthening Care in Collaboration With People With Lived Experience of Psychosis in Uganda

Launched by GEORGE WASHINGTON UNIVERSITY · May 8, 2023

Keywords

ClinConnect Summary

This clinical trial, titled "Strengthening Care in Collaboration With People With Lived Experience of Psychosis in Uganda," is exploring how to improve mental health services for individuals experiencing psychosis. The study focuses on engaging people who have personally experienced psychosis in designing and delivering care. By involving these individuals at various levels—home, community, and clinics—the researchers hope to create a more effective and supportive mental health system. The trial will compare traditional training methods for healthcare workers with a new approach that includes insights and experiences from individuals with lived experience of psychosis.

To participate in this trial, individuals must be at least 18 years old and have a confirmed diagnosis of a primary psychotic disorder, such as schizophrenia. They should also have completed a specific training program and be functioning well in daily life. Family members or caregivers who support these patients can also be involved. Participants can expect to contribute to important discussions about mental health care while receiving support and training that may enhance their own well-being. Ultimately, this research aims to lay the groundwork for future studies that could lead to better mental health services for people living with psychosis.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• 1. Facilitators of the implementation strategy:
• • 1. At least 18 years of age
• • 2. Confirmed diagnosis of a primary psychotic disorder (e.g., schizophrenia) by a psychiatrist or psychiatric clinical officer
• • 3. Completion of the YouBelongHOME (YBH) program
• • 4. Provision of informed consent,
• • 5. Fluency in the local language (Luganda)
• • 6. Good functioning with respect to performance of daily chores,engagement with family members, comprehension and community participation as assessed by the YBH team
• • 7. A supportive family member.
• 2. Primary care providers:
• • 1. Provides primary care in health facility of Kampala/Wakiso District
• • 2. Selected by facility in-charge
• • 3. Community health workers
• • 1. Provides community based health service in health facility where primary care providers are trained (from Kampala/Wakiso district)
• • 2. Selected by facility in-charge
• • 4. Patients (Primary beneficiaries)
• • 1. Persons diagnosed with psychosis at a primary health care facility in Kampala/Wakiso District; For this study, a diagnosis of psychosis will include the following diagnoses according to the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5):schizophrenia spectrum and other psychotic disorders \[brief psychotic disorder, schizophreniform disorder, schizoaffective disorder, schizophrenia, and organic psychosis (i.e., psychosis secondary to a medical condition such as HIV or an alcohol- or substance-use disorder)\];bipolar affective disorder and related disorders;
• • 2. Ability of the patient or responsible surrogate to consent to study enrolment and procedures;
• • 3. Persons eligible for outpatient management of psychosis
• • 5. Family members a. Family member or caregiver of the patients above.
• Exclusion Criteria:
• 1. Facilitators of the implementation strategy:
• • a. Inability to provide informed consent.
• 2. Primary care providers:
• • None
• 3. Community health workers:
• • None
• • 4. Patients
• • 1. Persons diagnosed with psychosis requiring inpatient management/services; and
• • 2. Persons for whom consent for participation in the study cannot be obtained.
• • 3. Patients found to be severely ill beyond the capacity of the health facility to treat.
• • 5. Family members a. Family members who doesn't provide consent for participation