Discovering Factors in Narcolepsy Patients' Clinical Research Experiences

Launched by POWER LIFE SCIENCES INC. · May 12, 2023

Keywords

ClinConnect Summary

This clinical trial is focused on understanding the experiences of patients living with narcolepsy, a condition that causes excessive daytime sleepiness and sudden sleep attacks. By participating in this study, patients can share their personal stories and insights, which will help researchers develop better treatments and support programs for those affected by narcolepsy. The trial is observational, meaning that it will gather information without giving participants any specific treatment.

To be eligible for the trial, participants need to be at least 18 years old and willing to follow the study's schedule and requirements. It's important that they can provide written consent to participate. However, women who are pregnant or breastfeeding, individuals unable to report their experiences electronically, or those who may be vulnerable to any interventions cannot take part. While the trial is not yet recruiting participants, it aims to create a platform for patients to voice their experiences, ultimately leading to improved care and understanding of narcolepsy.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Patient is at least 18 years of age
• • Patient is able and willing to comply with the treatment/follow-up schedule and requirements
• • Patient must provide written informed consent
• Exclusion Criteria:
• • Women who are pregnant, intend to become pregnant, or are lactating
• • Inability to perform regular electronic reporting
• • Participants who are vulnerable to any intervention