Lung Transplant READY CF 2: A Multi-site RCT

Launched by UNIVERSITY OF WASHINGTON · Sep 6, 2023

Keywords

ClinConnect Summary

The Lung Transplant READY CF 2 trial is studying how to help people with cystic fibrosis (CF) better understand lung transplants as a treatment option for severe lung disease. Many individuals with CF who might benefit from a lung transplant are never referred for one, often because they aren't fully informed about the process or have concerns about it. This study aims to see if an educational website can improve patients' readiness to discuss lung transplants with their doctors, especially for those from communities that might have less access to transplant services.

To participate in this study, you need to have cystic fibrosis and a lung function score (called FEV1) that is less than 50% of what is expected for someone your age. If you join, you'll take part in four online sessions, answer some surveys, and have access to the educational website. Additionally, researchers will listen to recordings of regular visits with your CF doctor to see how lung transplant discussions are occurring. Your involvement will last about six months. This study is open to all genders and is currently recruiting participants.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Diagnosis of cystic fibrosis
• • FEV1 less than 50% of predicted
• Exclusion Criteria:
• • People who are unable to provide informed consent
• • People who are lung transplant recipients
• • Unable to read or understand English or Spanish to complete surveys or access the website (currently only available in English and Spanish)