Resilience in East Asian Immigrants for Advance Care Planning Discussions

Launched by UNIVERSITY OF ILLINOIS AT CHICAGO · Sep 6, 2023

Keywords

ClinConnect Summary

This clinical trial is focused on helping East Asian immigrants who have been diagnosed with cancer to have important conversations about their future care options, known as advance care planning. The researchers are developing a digital program that is specially designed to meet the cultural needs of these individuals, encouraging them to talk openly with their family caregivers about their wishes and preferences regarding medical treatment.

To participate in this study, patients need to be at least 18 years old, have a cancer diagnosis, and be able to communicate in English, Mandarin, Cantonese, Japanese, or Korean. They should also have a family caregiver willing to join in the discussions. Participants will use a digital tool that helps them prepare for these conversations, making it easier to express their thoughts and feelings about their care. This trial is currently looking for participants, and it offers a unique opportunity for patients and their caregivers to engage in meaningful discussions that can significantly impact their quality of life.

Gender

ALL

Eligibility criteria

• Inclusion Criteria for Patients:
• • Age ≥ 18 years
• • Having a cancer diagnosis documented in the electronic medical record
• • Being able to read and respond to questions in English, Mandarin, Cantonese, Japanese, or Korean
• • Having a family caregiver who is willing to participate in the study
• • Have adequate electronic health literacy with a score of \> 30 on the electronic-Health Literacy Scale.
• Exclusion Criteria for Patients:
• • Having cognitive impairment per a Short Portable Mental Status Questionnaire with more than three errors
• • Having completed an advance directive
• • Being born in the US
• Inclusion Criteria for Family Caregivers:
• • Age ≥ 18 years
• • Being able to read and respond to questions in English, Mandarin, Cantonese, Japanese, or Korean
• • Being identified by the patient as a family caregiver
• • Having adequate electronic health literacy with a score of \> 30 on the electronic-Health Literacy Scale.