Vitaccess Real MG Registry

Launched by VITACCESS LTD · Sep 26, 2023

Keywords

ClinConnect Summary

The Vitaccess Real MG Registry is a long-term study aimed at understanding myasthenia gravis (MG), a condition that affects muscle strength. This registry will collect information from around 600 patients over 10 years to see how MG impacts their daily lives, treatments, and overall quality of life. The data gathered will come from patients and healthcare professionals, and will also include information from medical records to provide a complete picture of the condition.

To be eligible for this study, participants must be at least 18 years old, have a confirmed diagnosis of MG, and live in the US, UK, Germany, France, or Italy. They should also have access to a smartphone, tablet, or computer and be willing to provide informed consent in their local language. Participants can expect to share their experiences and health information regularly, helping researchers learn more about MG and potentially improve treatment options for others in the future.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Adult (age ≥18 years) with a clinically-confirmed diagnosis of myasthenia gravis (MG).
• • Resident in one of the scope countries.
• • Access to a smartphone/tablet/computer/laptop
• • Willing and able to provide informed consent in their local language to take part in the study.
• Exclusion Criteria:
• • Participation in a clinical trial at the time of study enrolment.