Rehabilitation Program on Genetic and Degenerative Ataxia

Launched by HOSPICES CIVILS DE LYON · Oct 17, 2023

Keywords

ClinConnect Summary

This clinical trial is studying a new rehabilitation program called PAMPERO, designed for adults with genetic and degenerative forms of cerebellar ataxia, a condition that affects coordination and movement. The program aims to improve the symptoms of ataxia, which can lead to difficulties with walking and coordination, and ultimately impact a patient's quality of life. The trial will evaluate how effective this intensive 5-week rehabilitation program is by measuring changes in symptoms before and three months after the program ends.

To be eligible for this study, participants must be at least 18 years old and have a confirmed diagnosis of cerebellar ataxia through an MRI scan. They should be able to walk independently on flat surfaces, and they must agree to participate freely. The program has shown promising early results, but researchers want to understand how long these benefits last and how they affect daily life. This study is not yet recruiting participants, but it represents a unique opportunity for individuals affected by this condition to potentially improve their quality of life through targeted rehabilitation.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • ≥ 18 years
• • Patients with genetic and degenerative cerebellar ataxia
• • Diagnostic of cerebellar ataxia confirmed by anatomic MRI
• • Affiliated to a social insurgence regime or similar
• • Patients who have given their free, informed and express consent
• • Walking patients (who can walk unsupervised on flat ground with the help of proper technique : categories greater than 4 on the New Functional Ambulation Classification scale)
• Non inclusion Criteria:
• • Patients who have already benefited from a hospitalization of more than 3 weeks for rehabilitation during the last 12 months
• • Patients participating simultaneously in another research whose objective would be the evaluation of a therapy, medicinal or not, likely to improve neurological or functional recovery
• • Pregnants, parturient or breastfeeding
• • Patients deprived of their liberty by a judicial or administrative decision
• • Psychiatric care patients
• • Patients admitted to Patients admitted to a health or social establishment for purposes other than research for purposes other than research
• • Major patients protected by the Law