Patient-reported Outcome and Patient-reported Experience After Status Epilepticus

Launched by VERSAILLES HOSPITAL · Oct 23, 2023

Keywords

ClinConnect Summary

The POSEIDON 2 study is looking at the long-term effects that patients experience after recovering from a serious condition called status epilepticus, which is when someone has prolonged or repeated seizures. This trial aims to understand how these seizures and their treatment in the intensive care unit (ICU) affect patients' daily lives, mental health, and overall quality of life. Researchers want to gather information directly from patients about their experiences and challenges after leaving the ICU, as well as understand how their families are affected.

To participate in this study, you need to be an adult who has survived an ICU stay for status epilepticus and is between 3 months and 5 years post-discharge. The study is currently recruiting participants and is open to everyone, regardless of gender. If you decide to join, you will share your experiences about your recovery and any ongoing difficulties you may face. Your feedback will help researchers get a clearer picture of how status epilepticus impacts patients and their families, which can lead to better care and support in the future.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Adults 18 years old or older
• • Patients previously included in the ICTAL registry (Status Epilepticus cohort NCT03457831)
• • Survivors after ICU management for Status Epilepticus More than 3 months and less than 5 years after ICU discharge
• Exclusion Criteria:
• • Legal guardianship
• • Opposition to participate
• • Unread and unwritten French language
• • Patient not affiliated to a Social Security system