Long-term Outcomes Associated With Juvenile-onset Mycosis Fungoides and Lymphomatoid Papulosis

Launched by M.D. ANDERSON CANCER CENTER · Jan 5, 2024

Keywords

ClinConnect Summary

This clinical trial is looking into the long-term effects of two skin conditions called juvenile-onset mycosis fungoides and lymphomatoid papulosis in young patients. The goal is to follow up with individuals diagnosed with these conditions before they turned 20 years old. Researchers want to check on how these conditions have affected their lives over time, gathering insights directly from the participants or their parents if they are still minors.

To participate in this study, individuals must have been diagnosed with either of these conditions before the age of 20. If the participant is under 18, their parents will be contacted to help answer the study questions since the children themselves are not involved. This trial is currently recruiting participants of any gender, and it aims to understand the long-term outcomes for those who have lived with these skin disorders. Participants can expect to share their experiences and health status, contributing valuable information that may help others in the future.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • -To be eligible, participants had to be diagnosed with jMF or lyp before age 20. In the case of participants below the age of 18, parents and not the children will be contacted for participation (children are exempt from participation as their parents may answer our study questions).
• Exclusion Criteria:
• • -Participants older than 20 years of age at diagnosis