Experience Life, Needs and Expectations of Families of Older Polyhandiccaped Persons

Launched by ASSISTANCE PUBLIQUE HOPITAUX DE MARSEILLE · Jan 15, 2024

Keywords

ClinConnect Summary

This clinical trial, called "Experience Life, Needs and Expectations of Families of Older Polyhandicapped Persons," is looking to understand the experiences of family caregivers who take care of older adults (35 years and older) with severe disabilities, known as polyhandicap. The researchers want to hear from parents and siblings about their feelings, needs, and expectations related to caring for their loved ones. They aim to gather insights that can help improve support for families in similar situations.

To participate in this study, you must be a parent (at least 18 years old) of an individual with severe polyhandicap who is 35 years or older, or a sibling of such a person. Participants will be asked to share their experiences and thoughts in interviews. The study is currently recruiting participants, and everyone involved will be informed about the study's goals and what to expect. Your input could be valuable in enhancing the understanding and support available to families caring for loved ones with complex needs.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Mother or father (\>=18 years) of a with severe polyhandicap aged 35 and over at the time of inclusion
• • Person (\>=18 years) having at least one parent in common with a person with a severe polyhandicap aged 35 and over at the time of inclusion
• • Person agreeing to participate after having been informed of the study's objectives and procedures
• Exclusion Criteria:
• • Parents and siblings whose inclusion criteria concerning the Persons with severe polyhandicap are not fulfilled
• • Parents and siblings who refuse to participate