Foundation for Sarcoidosis Research Advanced Cures Registry (FSR-SARC Registry)

Launched by FOUNDATION FOR SARCOIDOSIS RESEARCH · Jan 29, 2024

Keywords

ClinConnect Summary

The Foundation for Sarcoidosis Research Advanced Cures Registry (FSR-SARC Registry) is a study aimed at understanding sarcoidosis, a condition that causes inflammation in various parts of the body. This study invites people diagnosed with sarcoidosis to share their experiences, including their symptoms, how they were diagnosed, the treatments they have received, and how the disease affects their daily lives. The goal is to gather important information over time to help researchers better understand this condition and address the needs of the sarcoidosis community.

To participate in this study, you need to be an English speaker and have a diagnosis of sarcoidosis. There are no age limits, and anyone can join regardless of gender. If you choose to participate, you will be asked to provide information about your health and experiences, all while ensuring your privacy is protected. This is a great opportunity to contribute to research that could lead to better care and support for others living with sarcoidosis.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • 1. English speaking
• • 2. Consent
• • 3. Sarcoidosi diagnosis -
• Exclusion Criteria:
• • NONE