Search / Trial NCT06234384

Foundation for Sarcoidosis Research Advanced Cures Registry (FSR-SARC Registry)

Launched by FOUNDATION FOR SARCOIDOSIS RESEARCH · Jan 29, 2024

Trial Information

Current as of October 08, 2024

Recruiting

Keywords

Description

Participants review a document, Understanding Your Participation, and check boxes on the Participant Informed Consent document that confirms they understand the risks/benefits of participation (or Assent if the patient is a minor age 7-18), they create an online account, and then are asked to complete the baseline survey questionnaire. Participants confirm they understand that their participation is completely voluntary, that their identifying information will be secured and encrypted, their private health information will be stored separately in a secure database. Their private information...

Gender

ALL

Eligibility criteria

  • Inclusion Criteria:
  • 1. English speaking
  • 2. Consent
  • 3. Sarcoidosi diagnosis -
  • Exclusion Criteria:
  • NONE

About Foundation For Sarcoidosis Research

The Foundation for Sarcoidosis Research (FSR) is a leading nonprofit organization dedicated to advancing the understanding, diagnosis, and treatment of sarcoidosis through innovative research and education. Committed to improving the quality of life for individuals affected by this complex inflammatory disease, FSR collaborates with researchers, healthcare professionals, and patients to foster groundbreaking clinical trials and initiatives. By funding research projects, disseminating critical information, and advocating for patient-centered care, the Foundation plays a pivotal role in transforming the landscape of sarcoidosis management and enhancing outcomes for those impacted by the condition.

Locations

Chicago, Illinois, United States

People applied

Timeline

First submit

Trial launched

Trial updated

Estimated completion

Not reported

Discussion 0