BELIDE: Better Living With Non-memory-led Dementia

Launched by UNIVERSITY COLLEGE, LONDON · Jan 26, 2024

Keywords

ClinConnect Summary

The BELIDE trial is studying a new educational program designed to support caregivers of individuals with non-memory led forms of dementia, such as atypical Alzheimer’s disease or frontotemporal dementia. The aim is to see if this program can help improve the mental well-being of caregivers by providing them with tailored information and skills specific to these types of dementia. Many caregivers face unique challenges, especially when caring for someone who may still be in the workforce or has young children, so the program hopes to fill a gap in existing support.

To participate in this trial, caregivers must be at least 18 years old, provide care for someone diagnosed with non-memory led dementia (like primary progressive aphasia or behavioral variant frontotemporal dementia), and have regular contact with the person they're caring for. Participants will engage in an 8-week program that includes online learning modules and support sessions, with follow-ups to discuss their experiences. This trial aims not only to evaluate the program's effectiveness but also to understand how it can be best implemented and what benefits it brings to caregivers.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • 1. Adults (18+) who self-identify as an unpaid carer (partners, children, friends, etc.) of someone with PPA, PCA or bvFTD who is not living in a full-time care facility.
• • 2. The care recipient must have a confirmed diagnosis of dementia (through self-report of the carer, to reflect the 'real world' application of the intervention).
• • 3. Able to give informed consent.
• • 4. Good comprehension of written English.
• • 5. Access to the internet.
• Exclusion Criteria:
• • 1. Carers of people living with dementia in full-time care facility.
• • 2. Carers of people with severe dementia in terms of large impact on activities of daily living.
• • 3. Carers of individuals with any form of dementia other than PPA, PCA, or bvFTD. -