Development of a Culturally Tailored Resilience-building Intervention for Chinese American's Advance Care Planning Discussions

Launched by UNIVERSITY OF ILLINOIS AT CHICAGO · Jan 30, 2024

Keywords

ClinConnect Summary

This clinical trial is focused on improving advance care planning discussions among Chinese Americans who are dealing with serious health issues like cancer or heart disease. Advance care planning is about making decisions regarding your future healthcare, especially for situations where you may not be able to speak for yourself. The study aims to create a culturally tailored program that helps patients and their family caregivers feel more comfortable and prepared to have these important conversations.

To participate in the trial, individuals need to be at least 18 years old, have a diagnosis of cancer or heart failure, and be able to read and respond to questions in English or Mandarin. It's also important for participants to have a family caregiver who is willing to join in the discussions. The researchers are specifically looking for non-Hispanic Asian individuals. Participants in the study can expect to engage in discussions that aim to build resilience and improve their understanding of advance care planning, ultimately helping them make informed choices about their healthcare.

Gender

ALL

Eligibility criteria

• • Group 1
• Inclusion criteria for religious leaders:
• • Age ≥ 18 years of age;
• • Having served as a chaplain, pastor, or monk at a health care setting or religious organization in Chicago;
• • Being able to read and respond to questions in English or Mandarin;
• • Having experience in having end-of-life discussions with Chinese Americans in Chicago.
• • Group 2
• Inclusion criteria for Chinese Americans living in Chicago:
• • Age ≥ 18 years of age;
• • Identifying themselves as first- or second-generation Chinese Americans
• • Being able to read and respond to questions in Mandarin or English.
• • Group 3
• Inclusion criteria for Chinese Americans with experience in end-of-life care discussions:
• • Age ≥ 18 years of age;
• • Identifying themselves as first- or second-generation Chinese Americans;
• • Having experience discussing end-of-life care decisions with others;
• • Being able to read, write, and respond to questions in either English or Mandarin.
• • Exclusion criteria: Unwilling to provide consen