Development of a Culturally Tailored Resilience-building Intervention for Chinese American's Advance Care Planning Discussions

Launched by UNIVERSITY OF ILLINOIS AT CHICAGO · Jan 30, 2024

Keywords

ClinConnect Summary

This clinical trial is focused on improving advance care planning discussions among Chinese Americans who are dealing with serious health issues like cancer or heart disease. Advance care planning is about making decisions regarding your future healthcare, especially for situations where you may not be able to speak for yourself. The study aims to create a culturally tailored program that helps patients and their family caregivers feel more comfortable and prepared to have these important conversations.

To participate in the trial, individuals need to be at least 18 years old, have a diagnosis of cancer or heart failure, and be able to read and respond to questions in English or Mandarin. It's also important for participants to have a family caregiver who is willing to join in the discussions. The researchers are specifically looking for non-Hispanic Asian individuals. Participants in the study can expect to engage in discussions that aim to build resilience and improve their understanding of advance care planning, ultimately helping them make informed choices about their healthcare.

Gender

ALL

Eligibility criteria

• Inclusion criteria for patient participants:
• • Age ≥ 18 years of age
• • Having a cancer diagnosis or a heart failure diagnosis documented in the electronic medical record
• • Being able to read and respond to questions in English or Mandarin
• • Having a family caregiver who is responsible for the care and willing to participate in the study
• • Being of non-Hispanic Asian race/ethnicity
• Exclusion criteria for patient participants:
• • Having cognitive impairment per a Short Portable Mental Status Questionnaire with more than 3 errors
• • Having received heart transplantation or a left ventricular assist device • Having completed an advance directive
• • Being born in the US
• Inclusion criteria for identified family caregivers:
• • Age ≥ 18 years
• • Being able to read and respond to questions in English or Mandarin
• • Being identified by the patient as a family caregiver