Epilepsy Learning Healthcare System (ELHS)

Launched by EPILEPSY FOUNDATION OF AMERICA · Feb 15, 2024

Keywords

ClinConnect Summary

The Epilepsy Learning Health System (ELHS) is a special program aimed at improving the care and outcomes for people living with epilepsy and related conditions. This program brings together doctors, patients, and researchers to collect and analyze health data. By doing this, the ELHS helps improve individual patient care and overall health management for the community. Participants in this study will contribute information about their experiences with epilepsy, which will be used to create reports that track how treatments are working over time and to find ways to make care better.

To be eligible for this study, participants need to be receiving care from a doctor involved in the ELHS program. This means you should already have an established relationship with the healthcare team at the ELHS site. If you have been diagnosed with epilepsy, you can be part of this important research. Participants can expect to share their health information, which will help improve treatment not just for themselves but for others with epilepsy as well. This study is currently recruiting participants of all ages and genders, and it's a chance to contribute to a better understanding of epilepsy care.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• * In order to be eligible to participate in this registry-based study, an individual must meet all of the following criteria:
• • Patient is in an established care relationship with the ELHS site
• Exclusion Criteria:
• * An individual who meets any of the following criteria will be excluded from participation in this registry-based research study:
• • Patients who are not currently in nor expect to be in an established care relationship with the ELHS site (for example, patients who are being seen at the center for a second opinion only).
• • Patients who do not, after diagnostic evaluation, meet criteria for a diagnosis of epilepsy will not be analyzed in epilepsy-specific population groups. However, these non-epilepsy patients will not be excluded from the registry.