Creation of a Clinical Database for the Study of Phenotypic Variability in Motor Neuron Diseases

Launched by ISTITUTO AUXOLOGICO ITALIANO · Mar 15, 2024

Keywords

ClinConnect Summary

This clinical trial is focused on understanding motor neuron diseases (MND), including conditions like Amyotrophic Lateral Sclerosis (ALS). Researchers want to learn more about the different ways MND can show up in patients, known as "clinical phenotypes." By gathering this information, the study hopes to improve our understanding of the disease and help doctors predict how it might progress in different patients.

If you're between the ages of 65 and 74 and have been diagnosed with ALS or another motor neuron disease, you may be eligible to participate. Those who join the study will undergo several evaluations, including tests to assess their physical and mental health, as well as some additional tests to analyze genetic information. It's important to note that participation is entirely voluntary, and anyone who does not wish to take part will not be included in the study. This research could provide valuable insights into motor neuron diseases, helping improve care and treatment for patients in the future.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • diagnosis of ALS or other motor neuron disease
• Exclusion Criteria:
• • refusal to participate to the study