Transitional ePRO Diary Liver

Launched by FROM- FONDAZIONE PER LA RICERCA OSPEDALE DI BERGAMO- ETS · Mar 26, 2024

Keywords

ClinConnect Summary

This clinical trial, called the Transitional EPRO Diary Liver, is part of a larger project aimed at helping patients with liver disease manage their condition more effectively using a digital tool. The main goal of the study is to understand how young patients, aged 14 to 20, transition from pediatric care to adult care after receiving a liver transplant. By gathering information about their experiences, the researchers hope to identify factors that can help improve their psychological well-being during this important change.

Eligible participants are young people who have either received a liver transplant or are waiting for one at a specific transplant center. They should also have used certain mobile apps recently and provide signed consent to join the study. Participants can expect to share their experiences and provide information about their health, which will aid in developing better support tools for both patients and their healthcare teams. It's important to note that while this digital tool will enhance patient care, it is not a replacement for regular medical visits and treatments.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • patients between the ages of 14 and 20 who have been transplanted at the ASST-PG23 transplant center or are awaiting a liver transplant and belong to the transition to adult services
• • signed informed consent
• • proven use of the APPs (to be assessed based on the last 2 weeks)
• Exclusion Criteria:
• • -