Trilateral Retinoblastoma: Incidence and Outcomes

Launched by AMSTERDAM UMC, LOCATION VUMC · Apr 11, 2024

Keywords

ClinConnect Summary

This clinical trial is looking at a serious condition called trilateral retinoblastoma, which is a type of brain tumor that can develop in patients who have already been diagnosed with retinoblastoma, a cancer that affects the eyes. The study will gather information about how common this brain tumor is and how well patients survive after being diagnosed. Researchers believe that in lower-income countries, fewer patients may be diagnosed with trilateral retinoblastoma because they might not receive the best care for their eye tumors. This study aims to understand the survival rates and the incidence of this brain tumor based on different countries' income levels, with the goal of improving healthcare practices where they are needed most.

If you or a loved one has been diagnosed with retinoblastoma, you may be eligible to participate in this study. There are no specific age or gender restrictions, and all patients with a retinoblastoma diagnosis can participate. The study will run from 2024 to 2027, and while participating, you can expect to provide information about your health and treatment. This research could help doctors better understand how to improve care for patients with retinoblastoma and related brain tumors worldwide.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • patients diagnosed with retinoblastoma
• Exclusion Criteria:
• • none