Austrian Hypertrophic Cardiomyopathy Registry

Launched by MEDICAL UNIVERSITY OF GRAZ · Apr 12, 2024

Keywords

ClinConnect Summary

The Austrian Hypertrophic Cardiomyopathy (HCM) Registry is a research study that aims to gather important information about patients with hypertrophic cardiomyopathy, a condition where the heart muscle becomes thicker than normal. This study is taking place at various outpatient clinics across Austria, where patients will undergo thorough examinations. These include checking for symptoms, reviewing medical and family history, and performing tests like heart scans and genetic testing. By collecting this data, researchers hope to better understand HCM and improve diagnosis and treatment options for patients.

To participate in this study, individuals must be at least 18 years old and have specific measurements of heart thickness that indicate HCM. The study is currently recruiting participants, and those who join can expect to go through a detailed assessment of their heart health. It's important for potential participants to know that they need to provide consent to take part in this research. Overall, this registry will help create a clearer picture of HCM and could lead to advancements in care for those affected by this condition.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Patients admitted to the HCM outpatient clinic of participating centers of the HCM Registry
• • Interventricular septal thickness ≥ 13 mm and cardiomyopathy-specific red flags OR Interventricular septal thickness ≥ 15 mm not explainable by loading conditions OR Interventricular septal thickness ≥ 17 mm
• • Willingness and ability to provide signed informed consent form (ICF) prior to participation in any study-related procedures
• Exclusion criteria:
• • Age \< 18 years
• • Known cardiac amyloidosis