Recruitment and Engagement in Care to Impact Practice Enhancement (RECIPE) for Sickle Cell Disease
Launched by RTI INTERNATIONAL · Apr 22, 2024
Trial Information
Current as of June 26, 2025
Recruiting
Keywords
ClinConnect Summary
The RECIPE trial is studying how to improve care for people living with Sickle Cell Disease (SCD) who have not seen a specialist in the last year. Researchers want to find the best ways to connect these individuals with the care they need. To do this, they will look for participants through different methods and then use trained staff, called linkage coordinators, to help engage these patients in treatment. Participants will complete a survey about their past and current treatments, experiences with clinics and hospitals, pain, and overall quality of life. They will also have the option to take part in a one-hour interview to share their feelings about their treatment and care experiences.
To join the trial, individuals must be at least 18 years old, have a confirmed diagnosis of SCD, and not have seen a specialist in the past year. Participants should be able to read and understand English. Unfortunately, those under 18, unable to give consent, or with sickle cell trait cannot participate. This study is currently recruiting participants and aims to gather valuable insights that could enhance care for those living with SCD.
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • Persons must be \>/= 18 years of age
- • Persons must have confirmed SCD
- • Persons not seen by a SCD specialist \> 1 year +/- 3 months
- • Literacy in English will be required of the consenting patient or parent/guardian
- Exclusion Criteria:
- • Persons \< 18 years of age
- • Persons that are unable to provide informed consent and do not have a designated care-giver that can consent on his/her behalf
- • Persons with sickle cell trait (as per hemoglobin electrophoresis)
- • Persons seen by a SCD specialist \< 1 year +/1 3 months
About Rti International
RTI International is a leading nonprofit research institute dedicated to improving the human condition through innovative scientific research and technical assistance. With a strong focus on health and social science, RTI collaborates with various stakeholders, including government agencies, private organizations, and academic institutions, to advance knowledge and drive impactful solutions. The organization is recognized for its rigorous methodologies and commitment to ethical research practices, making it a trusted sponsor for clinical trials aimed at enhancing public health and advancing medical science. Through its comprehensive approach, RTI International contributes to the development of evidence-based strategies that address pressing health challenges globally.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Philadelphia, Pennsylvania, United States
Phoenix, Arizona, United States
Chicago, Illinois, United States
Cleveland, Ohio, United States
Houston, Texas, United States
Augusta, Georgia, United States
Birmingham, Alabama, United States
Oakland, California, United States
Memphis, Tennessee, United States
Patients applied
Trial Officials
Julie Kanter, MD
Principal Investigator
University of Alabama, Birmingham (UAB)
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported