Navigating Pregnancy and Parenthood With Lyme Disease

Launched by CHILDREN'S NATIONAL RESEARCH INSTITUTE · Apr 30, 2024

Keywords

ClinConnect Summary

This clinical trial, titled "Navigating Pregnancy and Parenthood With Lyme Disease," is looking at the experiences of women who have had Lyme disease and their journey through pregnancy and parenting. The study aims to understand how having Lyme disease, which can cause various symptoms, affects their experiences during and after pregnancy. If you or someone you know has been diagnosed with Lyme disease, post-treatment Lyme disease syndrome, or chronic Lyme disease during or before a pregnancy, you might be eligible to participate.

Participants in this study will be asked to complete surveys about their medical history, their children’s development, and some personal information. Following the surveys, they will take part in an interview where they can share their personal experiences related to pregnancy and parenting while dealing with Lyme disease. To join, individuals must be over 18 years old, live in the U.S. or Canada, and have a diagnosis of Lyme disease from a healthcare provider. This study provides a chance for participants to voice their unique experiences and contribute to understanding the challenges they face.

Gender

FEMALE

Eligibility criteria

• Inclusion Criteria:
• • Over 18 years of age and reside in the United States or Canada
• • Diagnosed with acute Lyme disease, PTLDS, and/or Chronic Lyme by a health care provider while they were pregnant OR PTLDS/CL prior to becoming pregnant with ongoing symptoms during pregnancy
• Exclusion Criteria:
• • Under 18 years of age
• • Live outside of the United States or Canada
• • Never been diagnosed with Lyme disease by a medical provider
• • Never been pregnant
• • Never given birth to a liveborn infant
• • Previously participated in a qualitative study about their experience with Lyme disease
• • Do not want to agree to having their interviews audio recorded