MyStroke for Stroke Survivors and Caregivers

Launched by UNIVERSITY OF PENNSYLVANIA · May 29, 2024

Keywords

ClinConnect Summary

The MyStroke trial is studying how a personalized video-based education platform can help stroke survivors and their caregivers. The main goals are to find out if this kind of education improves understanding of stroke, reduces the need for extra medical visits after leaving the hospital, and whether different ways of encouraging people to engage with the material make a difference. Participants will be divided into two groups: one will receive standard stroke education, and the other will get both the standard education and access to the personalized video platform. Researchers will check how much participants have learned 90 days after they leave the hospital.

To be part of this study, participants need to be at least 18 years old, have been diagnosed with an acute ischemic stroke, and must be going home or to a rehabilitation facility after their hospital stay. They should also have access to an internet-enabled device, like a smartphone or computer, and be comfortable communicating in English or Spanish. Participants will receive education while in the hospital, fill out a survey before leaving, and then complete follow-up surveys at 7 and 90 days after discharge. This trial is not yet recruiting, but it aims to enhance the support and knowledge for those affected by stroke.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • At least 18 years old
• • Admitted to hospital with clinical diagnosis of acute ischemic stroke (imaging confirmation not required)
• • Stroke symptom onset within 30 days of enrollment
• • Being discharged to either home or an acute rehabilitation facility
• • Access to internet enabled device (smartphone, tablet, computer)
• • Fluent in either English or Spanish (does not need to be native or primary language)
• • Willingness and ability to sign informed consent
• Exclusion Criteria:
• • Severe aphasia (score of ≥2 on NIHSS item 9)
• • Ischemic stroke that is attributed to a surgical procedure
• • Resides in a skilled nursing facility prior to admission
• • Being discharged to skilled nursing facility or long-term acute care facility
• • Unwillingness or inability to participate in remote/virtual study visits
• • A terminal or advanced condition that raises the possibility the subject may not survive 90 days
• • Any other illness or condition that the investigator feels would pose a hazard to the subject from participation in the study