The Mere-measurement Effect of Patient-reported Outcomes

Launched by MEDICAL UNIVERSITY OF VIENNA · Jun 3, 2024

Keywords

ClinConnect Summary

This clinical trial is studying the impact of how questions are phrased when patients report their health experiences. Specifically, it looks at whether the words used—whether they are positive or negative—affect how patients feel about their conditions, and if answering these questions multiple times influences their thoughts and behaviors. The aim is to understand the best ways to ask patients about their health to get the most accurate information.

To participate in this study, you need to be between 18 and 74 years old, speak English well, and be comfortable using technology to answer online questionnaires. You must also have a speech-related condition such as muscle tension dysphonia, laryngeal obstruction, ALS, or speech difficulties from a stroke or brain injury. If you decide to join, you can expect to complete a questionnaire online, and your feedback will help improve how healthcare providers understand and support patients with speech disorders.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • All patients will be required to have a qualifying disorder known to effect speech as identified below. Patients who meet the eligibility criteria will be invited to participate in the study by the researchers. Eligibility will be assessed prior to enrolment recruitment screening. AKH patients are not targeted for this study. All patients, regardless of geographic location around the world, can be recruited. The study is entirely online.
• Subjects must meet the following inclusion criteria for study entry:
• • Strong English skills\*
• • Technology savvy - able to complete online questionnaire
• * Suffering from one of the following:
• • Muscle tension dysphonia
• • Inducible laryngeal obstruction
• • Amyotrophic lateral sclerosis (ALS)
• • Patients after a stroke or other brain injury/damage/trauma, (aphasia, dysarthria)
• • Parkinson's disease
• Exclusion Criteria:
• • Under the age of 18