TAKINGCARE - TAcKlING the Needs of Carers of People With Chronic respirAtoRy disEases

Launched by AVEIRO UNIVERSITY · Jun 9, 2024

Keywords

ClinConnect Summary

The TAKINGCARE clinical trial is focused on understanding and supporting the needs of family members and friends who care for people with chronic respiratory diseases (CRD), such as COPD or severe asthma. The study aims to develop a tool that can assess the needs of these informal carers throughout the progression of the diseases. Researchers will also review existing tools, gather information on the specific needs of these carers, and evaluate their understanding of health-related information.

To participate in this study, you must be an adult (18 years or older) who either has a chronic respiratory disease and can identify a family member or friend who provides care, or you are that informal carer. Health professionals who work with patients with CRD can also join. Participants can expect to share their experiences in interviews or surveys that will help researchers create better support systems for carers. This research is crucial in recognizing and addressing the often-overlooked challenges faced by those who provide essential care to loved ones with chronic respiratory conditions.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• * People with chronic respiratory diseases (CRD):
• • 18 years of age or older;
• • Diagnosed with ILD, COPD, lung cancer, severe asthma or bronchiectasis;
• • Fluent in Portuguese;
• • Identify an informal/family carer;
• * Informal carers of people with CRD:
• • 18 years of age or older;
• • Fluent in Portuguese.
• * Health Professionals:
• • Fluent in Portuguese;
• • Contact with people with CRD in their clinical practice.
• Exclusion Criteria:
• * People with CRD:
• • Signs of cognitive impairment in the Six-item Cognitive Impairment Test (6CIT) for the interviews.
• * Informal carers of people with CRD:
• • Signs of cognitive impairment in the 6CIT.