Taiwan Interstitial Lung Disease Multi-center Investigation and Registry

Launched by TAICHUNG VETERANS GENERAL HOSPITAL · Jun 24, 2024

Keywords

ClinConnect Summary

The Taiwan Interstitial Lung Disease Multi-center Investigation and Registry is a study designed to learn more about the long-term health outcomes of patients with fibrotic interstitial lung disease (ILD), which is a group of diseases that cause scarring in the lungs. This research will collect important health information from patients across multiple hospitals, including details about their overall health, other medical conditions they may have, and various tests like lung function tests and heart evaluations. Participants will receive regular check-ups, including yearly scans and exercise tests, to help the researchers gather comprehensive data.

To be eligible for this study, participants need to be 18 years or older and have a confirmed diagnosis of ILD by a qualified doctor. The study aims to answer important questions, such as how different types of ILD affect survival rates, the risks of sudden worsening of the disease, and how well current treatments are working. This could be a valuable opportunity for patients to contribute to medical research while receiving close monitoring of their condition.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • 1. Aged over 18 years old.
• • 2. Diagnosed as ILD by a pulmonologist, rheumatologist or radiologist
• • 3. Various casue of ILD, including Idiopathic pulmonary fibrosis (IPF), Connective tissue disease-associated interstitial lung disease (CTD-ILD), Unclassifed ILD, drug-induced ILD, lymphangioleiomyomatosis (LAM), and sarcoidosis-associated ILD.
• Exclusion Criteria:
• • 1. Under 18 years of age.
• • 2. Failure to express informed consent in person.