Educational Support Group Program for Bilingual and Spanish-speaking Carepartners and People With Progressive Aphasia

Launched by UNIVERSITY OF TEXAS AT AUSTIN · Jul 18, 2024

Keywords

ClinConnect Summary

This clinical trial is studying the benefits of an educational support group program specifically designed for bilingual and Spanish-speaking individuals with progressive aphasia, a condition that affects their ability to communicate, as well as their care partners. The goal is to provide support and training to help improve communication skills and overall well-being. Participants will be assessed before and after the program to see how well it works, and they can join the sessions online, making it accessible to people in the U.S. and even in countries like Mexico and Spain.

To be eligible for this study, participants must speak Spanish and/or English, identify as Hispanic or Latinx, and have access to a device with internet for video calls. Individuals with progressive aphasia need to be aware of their language difficulties and willing to engage in group discussions, while their care partners should be involved and open to sharing their experiences. Participants can expect to attend regular meetings, engage in discussions, and receive valuable support from others in similar situations. This trial is currently recruiting, and it offers a unique opportunity to connect with others and gain skills to manage communication challenges.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• All participants must:
• • speak Spanish and/or English (although participants may speak other languages in addition to Spanish and/or English)
• • identify as Hispanic and/or Latinx,
• • or their spouse/family member with PA identifies as Hispanic and/or Latinx
• • see and hear well enough to participate
• • have access to a computer or mobile device with video capability
• • have an internet connection
• Additional inclusion criteria for PA/ language-led dementia support group participants:
• * Individuals with PA:
• • Has a diagnosis of PA, or language-led dementia, and aphasia is one of the primary causes of difficulty with activities of daily living
• • Aware of language difficulties and willing to discuss them
• • Able to actively engage in group discussion and complete activities with minimal support
• • Able to regularly attend meetings
• • Willing to follow the rules of the support group for interacting with others respectfully
• Additional inclusion criteria for care partner support group plus implementation phase participants:
• * Individuals with PA:
• • Diagnosis of aphasia or dementia that is progressive in nature, and aphasia is one of the primary causes of difficulty with activities of daily living
• • Have some ability to communicate and understand communication in order to participate in training sessions
• • Are functionally able to engage in training sessions (e.g., able to maintain some attention, minimal challenging behavior that would cause disruption)
• • Have a care partner who also consents to participating in the project
• * Care partners:
• • Self-identification as a caregiver of an individual with a diagnosis of PA or language-led dementia
• • Willing to discuss caregiving for individuals with PA/ language-led dementia
• • Able to regularly attend meetings
• • Willing to follow the rules of the support group for interacting with others respectfully
• Exclusion Criteria:
• • • Beyond the inclusion criteria included above, no additional exclusion criteria apply