Jumpstarting Advance Care Planning With ANAI People
Launched by SOUTHCENTRAL FOUNDATION · Aug 1, 2024
Trial Information
Current as of June 26, 2025
Enrolling by invitation
Keywords
ClinConnect Summary
Despite a disproportionate burden of serious illness, Alaska Native and American Indian (ANAI) people are far less likely than their peers in the general US population to use palliative care, including advance care planning (ACP), which aims to align medical care with patients' values, goals, and preferences. ACP has been demonstrated to result in decreased depression, anxiety, and grief for patients and their families, increased symptom management, and fewer non-beneficial and unwanted end-of-life treatments. ACP is typically documented in advance directives (ADs) that specify patient pref...
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • Alaska Native and/or American Indian
- • Age 40 or older
- • Empaneled to a Southcentral Foundation primary care provider
- • Diagnosed with at least 1 serious illness (e.g., cancer, COPD, kidney disease)
- • Has made 2 or more to primary care in last 12 months
- • No Advance Directive documented in electronic health record
- Exclusion Criteria:
- • Cognitive impairment (≥ 2 errors) as assessed by the validated Short Portable Mental Status Questionnaire
- • Not able to complete 30-minute study visit by phone or in person
About Southcentral Foundation
Southcentral Foundation (SCF) is a nonprofit health care organization dedicated to providing high-quality medical services to Alaska Native and American Indian populations in Southcentral Alaska. Established in 1982, SCF emphasizes a holistic approach to health care, integrating traditional practices with modern medical techniques to enhance the well-being of the communities it serves. As a recognized leader in patient-centered care, SCF actively engages in clinical research and trials to advance health outcomes, contribute to medical knowledge, and promote the unique cultural values of its clientele. Through innovative programs and collaborative partnerships, SCF aims to improve overall health and foster sustainable solutions for the populations it supports.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Anchorage, Alaska, United States
Patients applied
Trial Officials
Jennifer Shaw, PhD
Principal Investigator
University of Alaska Fairbanks
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported