Sun Yat-Sen Cohort of CNS Idiopathic Inflammatory Demyelinating Diseases

Launched by SUN YAT-SEN MEMORIAL HOSPITAL OF SUN YAT-SEN UNIVERSITY · Aug 2, 2024

Keywords

ClinConnect Summary

The Sun Yat-Sen Cohort study is looking to better understand certain diseases that affect the central nervous system, including Multiple Sclerosis (MS) and related conditions, within the Chinese population. This research aims to identify the characteristics and factors that might predict how these diseases progress and respond to treatment. By gathering information from patients, the study hopes to provide useful insights that can help doctors make better treatment decisions.

To participate in this study, individuals must be between 18 and 65 years old and have been diagnosed with one of the specified central nervous system inflammatory diseases. Participants will receive standard medical care based on current guidelines, along with ongoing evaluations from specialists in neuroimmunology. It's important to note that participants won't receive any special treatments beyond what is normally recommended. If you're considering joining, you'll need to agree to participate and sign a consent form, ensuring you understand the study and its goals.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • 1. Patients aged 18-65 years with central nervous system idiopathic inflammatory demyelinating diseases (CNS IIDD);
• • 2. The clinical syndrome of the attack meets one of the following: MS, NMOSD, MOGAD, ADEM, clinically isolated syndrome, demyelinating encephalopathy, demyelinating myelitis, or brainstem encephalitis (see below A-E);
• • 3. Agree to participate in this study and sign the informed consent form.
• Exclusion Criteria:
• • 1. History of tumors or diagnosis of central nervous system tumors;
• • 2. Infectious lesions of the central nervous system;
• • 3. Hereditary, metabolic, toxic, vascular, or traumatic demyelinating diseases of the brain/spinal cord;
• • 4. Non-compliance with treatment and follow-up.