Stakeholder Perspectives on the Need for a Digital Solution in Pediatric Rehabilitation

Launched by UNIVERSITY HOSPITAL, BREST · Aug 22, 2024

Keywords

ClinConnect Summary

This clinical trial is exploring the need for a digital solution called Deneo Kid that could help children with disabilities, their families, and healthcare professionals communicate better and manage health care more effectively. Many children with chronic conditions see multiple providers and often experience gaps in their rehabilitation care. The goal of this project is to understand how a shared digital platform could meet the needs of children aged 11 to 25, their families, and professionals in areas like rehabilitation, education, and leisure.

Eligible participants include health and social care professionals who work with children with disabilities, decision-makers in healthcare settings, and young people aged 11 to 25 who have had disability-related rehabilitation. Those interested will take part in interviews conducted over Zoom, where they can share their thoughts and experiences regarding this potential digital tool. The insights gathered will help shape the development of the Deneo Kid application, aiming to improve the care and support provided to children with disabilities.

Gender

ALL

Eligibility criteria

• • PROFESSIONALS
• Inclusion Criteria :
• • Be a health, social, educational or leisure professional involved in the rehabilitation of children with disabilities (doctor, physiotherapist, occupational therapist, kinesiologist, psychomotor therapist, speech therapist, psychologist, specialized educator, social worker, school nurse, sports educator in a leisure center, nursery assistant in a crèche, etc.).
• • Speak and understand French
• • DECISION MAKERS
• Inclusion Criteria:
• • Be a professional working in the health or social field and managing or coordinating a team of rehabilitation professionals working in pediatrics (clinical coordinator, health executive, senior health executive, clinical expert, director of a medico-social establishment, etc.), or a leisure structure for children with disabilities, or a crèche for children with disabilities.
• • Speak and understand French
• • PATIENTS
• Inclusion criteria:
• • be between the ages of 11 and 25
• • have had a disability as defined by the International Classification of Functioning and Disability (ICF) since childhood
• • have undergone or be undergoing paediatric rehabilitation care
• • have been followed or be followed by at least 3 different rehabilitation, school or leisure professionals (e.g. private physiotherapist, APA Handisport, specialized school teacher, etc.)
• • have good oral communication skills
• Exclusion criteria:
• • - communication difficulties (e.g. aphasia) or intellectual deficiencies that make it impossible to express oneself during an interview lasting about 1 hour