Long-term Impact of NMDAR Encephalitis

Launched by HOSPICES CIVILS DE LYON · Sep 20, 2024

Keywords

ClinConnect Summary

This clinical trial is studying the long-term effects of NMDAR encephalitis, a rare autoimmune disease that affects the brain and can cause serious symptoms like memory loss, seizures, and even coma. The aim is to understand how this condition impacts patients after the initial treatment phase, particularly focusing on their social and psychological well-being. This is important because many patients are young adults, with an average age of 21, and they may face ongoing challenges in their everyday lives, including work and relationships.

To participate in this trial, you need to be at least 18 years old and diagnosed with NMDAR encephalitis. You should also be covered by a social security system and able to give your consent to join the study. The trial is currently recruiting participants, and those who join can expect to share their experiences and possibly help researchers learn more about how to improve the quality of life for others affected by this condition. If you or someone you know fits these criteria, this could be an opportunity to contribute to important research.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Patients with NMDAR encephalitis
• • Age ≥ 18 years old
• • Patient affiliated to a social security system
• • No opposition from the patient
• Exclusion Criteria:
• • Patients whithout NMDAR encephalitis
• • Age \< 18 years old
• • Patient under guardianship or curatorship
• • Patient with neurological disorders pre-existing encephalitis