SupporTive Care At Home Research for Patients with Progressive Neurologic Disease Patients (STAHR-Neuro) (HOMECARE)

Launched by BELONG CHO · Oct 28, 2024

Keywords

ClinConnect Summary

The STAHR-Neuro trial is studying how home-based care affects the health and hospital visits of patients with progressive neurological diseases, like Motor Neuron Disease or Parkinson's Disease. This type of care includes education for patients and their family caregivers, home visits from specialized medical staff, and regular check-ups to monitor the patient's condition. The goal is to see if this support helps reduce the number of hospital stays and emergency room visits over one year.

To be eligible for this study, both the patient and their family caregiver need to meet certain criteria. Patients must have a diagnosed progressive neurological disorder and a specific level of disability, while caregivers should either live with the patient or visit often. Participants can expect to receive support tailored to their needs while helping researchers understand the benefits of home care for these patients. It's important to note that participants need to be able to communicate in Korean and should not have used hospice or palliative care services recently.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Both the patient and their family caregiver must meet the criteria to be considered for this research.
• • Patient
• • Diagnosis of Progressive Neurological Disorders (Motor Neuron Disease, Parkinson's Disease) with ICD-10 codes (G12.2, G20, G11.9, G21, G22, G23, G30.8, G31.8, F02.3, etc.), additional diseases can be included depending on the patient's condition.
• • Individuals with a modified Rankin Score (mRS) of 3-5 A person who wishes to stay at home A person whose family caregiver resides at home A person who wishes to participate in the research Family Caregiver
• • A family\* member of the patient
• • \* Family: refers to the patient's spouse (including a common-law partner), descendants and their spouses up to the second degree, siblings and their spouses, and relatives and their spouses up to the eighth degree.
• A person who meets one of the following conditions:
• • Lives with the patient (patient's household member) Does not live with the patient, but visits the patient's home more than three times a week A person who wants the patient to stay at home A person who can communicate easily with medical staff A person who wishes to participate in the research
• Exclusion Criteria:
• • If either the patient or the family caregiver meets any one of these criteria, they are excluded from the study.
• • Patient
• • A person who cannot speak, hear, or read Korean A person who is judged by a medical doctor to be unable to take part in this research due to extremely poor health A person residing outside the range that can be visited by the respective medical institution (the conditions for distance are to be specified by each medical institution)\*
• • \* This condition is not applicable for the control group.
• • A person who has used hospital- or home-type hospice and palliative care services A person who is under the age of 19 Family Caregiver
• • A person who cannot speak, hear, or read Korean A person who is judged by a medical doctor to be unable to take part in this research due to extremely poor health A person under the age of 19