MyRareDiet A Novel Diet Tracking Tool

Launched by OREGON HEALTH AND SCIENCE UNIVERSITY · Oct 28, 2024

Keywords

ClinConnect Summary

The MyRareDiet clinical trial is focused on developing a new tool called MyRareDiet® (MRD) to help people with certain metabolic disorders, such as urea cycle disorder, propionic acidemia, maple syrup urine disease, and methylmalonic acidemia, manage their diets better. These disorders require careful dietary management, and this tool aims to make it easier for patients to stick to their treatment guidelines while also collecting useful dietary information for research.

To be eligible for this trial, participants need to be diagnosed with one of the specified conditions and should be following a diet where at least half of their energy comes from foods they eat. They also need to have a specific dietary goal and access to the internet to use the MyRareDiet tool. This clinical trial is not yet recruiting participants, but it will be open to people of all ages, except for pregnant individuals. Participants in this study can expect to help improve dietary management for themselves and others with similar conditions, contributing valuable information that may enhance future treatments.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • diagnosed with urea cycle disorder, propionic acidemia, maple syrup urine disease or methylmalonic acidemia
• • consuming a diet where ≥50% of energy is supplied by foods consumed orally
• • self-known (or prescribed) dietary energy goal and protein restriction
• • internet connected device to access MyRareDiet
• Exclusion Criteria:
• • pregnant