Comparison of the Effects of Synchronous and Asynchronous Telerehabilitation in Patients with Juvenile Familial Mediterranean Fever

Launched by ISTANBUL UNIVERSITY - CERRAHPASA · Dec 16, 2024

Keywords

ClinConnect Summary

This clinical trial is looking at two different ways to help young people with Familial Mediterranean Fever (FMF) improve their physical fitness through exercise. In this study, teens aged 12 to 18 who have been diagnosed with FMF will be divided into two groups. One group will participate in live online exercise sessions with a physiotherapist using Zoom, while the other group will follow pre-recorded exercise videos on a private YouTube channel. Both groups will exercise for 8 weeks, twice a week, focusing on activities like squats, lunges, and jumping.

To be eligible for this trial, participants need to be between 12 and 18 years old and have had FMF for at least six months without any flare-ups. They also need to have internet access and be able to use a device with a camera and microphone. Throughout the study, the team will measure things like fatigue, walking ability, balance, and pain to see which exercise approach works best. This trial is a great opportunity for young patients to get involved in a structured exercise program that could help improve their overall well-being.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Being between the ages of 12-18
• • The parent's willingness to have their child participate in the study
• • Being diagnosed with FMF at least 6 months ago
• • Being in an attack-free period
• • Have an internet access
• • Being able to use a computer, tablet or smartphone
• • Have access to a technological device with a camera, microphone and speaker output
• • Being willing to participate in the study
• Exclusion Criteria:
• • Having any musculoskeletal disease or orthopedic, neurological, psychological disease that may prevent participation in exercise
• • Acute pain for any reason
• • Development of amyloidosis