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Search / Trial NCT06782230

ScATtEred Rare Disease Biobanks: a Model of Sample/Data Collection With susTainablE and Shared Criteria

Launched by IRCCS POLICLINICO S. DONATO · Jan 16, 2025

Trial Information

Current as of July 02, 2025

Recruiting

Keywords

Neuromuscolar Disorders Biobanking Biological Samples Clinical Data Rare Diseases Marfan Syndrome Huntington Disease Angioedema Congenital Heart Disease

ClinConnect Summary

This clinical trial is focused on creating a network of biobanks in Italy to collect samples and data from patients with rare diseases. Rare diseases are conditions that affect a small number of people and can be very difficult to diagnose and treat. By building this network, the goal is to improve research and develop better treatments for these diseases. The biobanks will gather biological samples and related information, helping scientists to find new ways to diagnose and manage rare diseases more effectively.

Anyone with a rare disease or their family members can participate in this trial, as there are no specific exclusions. Participants can expect to contribute to the collection of important samples and data that could help advance research in rare diseases. This project aims to standardize the processes of collecting and storing samples, which will make it easier for researchers to collaborate both nationally and internationally. By participating, you could play a vital role in helping improve the lives of those affected by rare diseases.

Gender

ALL

Eligibility criteria

  • Inclusion Criteria: patients with a rare disease or family members -
  • Exclusion Criteria: none
  • -

About Irccs Policlinico S. Donato

IRCCS Policlinico S. Donato is a leading Italian research hospital and clinical trial sponsor dedicated to advancing medical science through innovative research and patient care. As an IRCCS (Istituto di Ricovero e Cura a Carattere Scientifico), it is recognized for its commitment to high-quality clinical research and the integration of scientific investigation with clinical practice. The institution specializes in various medical fields, including cardiology, oncology, and neurology, and collaborates with universities and research organizations to facilitate cutting-edge studies. With a focus on improving patient outcomes and contributing to public health, IRCCS Policlinico S. Donato plays a pivotal role in the development of new therapies and treatment protocols.

Locations

San Donato Milanese, Milan, Italy

Patients applied

0 patients applied

Trial Officials

Rosanna Cardani, PhD

Principal Investigator

IRCCS Policlinico S. Donato

Timeline

First submit

Trial launched

Trial updated

Estimated completion

Not reported