ATHNdataset Registry
Launched by AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK · Feb 6, 2025
Trial Information
Current as of June 26, 2025
Enrolling by invitation
Keywords
ClinConnect Summary
Participants who agree to participate will let their health information be included in the ATHNdataset Registry, and the information will be updated regularly to reflect the participant's current health status. This registry includes collecting, storing and managing health information through a secure database. The following health information will be collected:
* Demographics (e.g., age, gender, income, education/occupation)
* The type of blood disorder you have
* Date you were diagnosed, or symptoms began
* Family history of the disorder
* Testing and assessments
* Physical exams
* Heigh...
Gender
ALL
Eligibility criteria
- Inclusion Criteria:
- • Any participant evaluated for or the potential to have a blood disorder who has an encounter with an ATHN Affiliate.
- • Participants of any age.
- • Participant is able to provide consent or assent; a Legally Authorized Representative (LAR) may provide consent on a participant's behalf if a participant is unable to provide self-consent
- Exclusion Criteria:
- • Any participant unable to provide consent or assent to participate in the ATHNdataset
About American Thrombosis And Hemostasis Network
The American Thrombosis and Hemostasis Network (ATHN) is a leading nonprofit organization dedicated to advancing the understanding and treatment of thrombosis and hemostasis disorders. Through collaborative research initiatives and clinical trials, ATHN aims to enhance patient outcomes by fostering innovation in treatment approaches and promoting evidence-based practices. By uniting healthcare professionals, researchers, and patients, the organization strives to improve the quality of care and support ongoing education in the field, ultimately contributing to the advancement of therapies for individuals affected by these complex conditions.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Hickory, North Carolina, United States
Patients applied
Trial Officials
Tammuella Chrisentery-Singleton, M.D.
Principal Investigator
American Thrombosis and Hemostasis Network
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported