Global Survey on Newborns' HOspitalisation and Parental Experiences - the HOPE Study

Launched by GLOBAL FOUNDATION FOR THE CARE OF NEWBORN INFANTS · Feb 12, 2025

Keywords

ClinConnect Summary

This clinical trial, called the Global Parent Survey, is designed to understand the experiences and emotional challenges faced by parents of newborns who need special care, like those born prematurely or with low birth weight. The study will use an online survey to gather information about how these parents cope with feelings of anxiety, stress, and uncertainty during their baby's hospital stay. Researchers are particularly interested in how certain care practices and support systems can help families during this difficult time.

To participate in this survey, parents or primary caregivers must have a newborn who was born on or after January 1, 2022, and received special medical care, such as oxygen therapy or treatment for infections and other serious conditions. Unfortunately, other family members cannot participate, and those whose babies did not require intensive care or were born before the specified date are also excluded. This survey is not yet open for recruitment, but once it starts, eligible parents can expect to share their thoughts and feelings in a supportive environment, helping improve care for families in similar situations.

Gender

ALL

Eligibility criteria

• Inclusion Criteria:
• • Parent or caregiver of a newborn infant born on January 1, 2023, or thereafter, who received/is receiving special/intensive care starting within the first week of life such as oxygen therapy or other respiratory support, incubator treatment, intravenous infusions, treatment of (suspected) sepsis, pneumonia, necrotising enterocolitis, malformations, jaundice, nutritional/feeding problems, hypoglycemia, etc.
• Exclusion Criteria:
• • Other family members than parents/(primary) caregivers
• • Parents of newborns that did not receive special/intensive care starting within the first week of life
• • Parents or caregivers of infants born before 1 January 2023
• • Persons with insufficient proficiency of one of the languages of the questionnaire