Beliefs, Attitudes, and Response to Genetic Testing in SarcomaPatients
Launched by UNIVERSITY OF UTAH · Mar 7, 2025
Trial Information
Current as of July 24, 2025
Recruiting
Keywords
ClinConnect Summary
This clinical trial is exploring the beliefs and attitudes of patients with leiomyosarcoma, a type of cancer, regarding genetic testing. Researchers want to understand how patients feel about the possibility that their cancer might be inherited and how they view genetic testing that can help identify any inherited risks. By gathering this information, the study aims to find the best way to incorporate genetic testing into the care of these patients, especially since some leiomyosarcomas are linked to inherited cancer predisposition syndromes.
To participate in this study, you must be at least 18 years old and able to read and speak English. You can join if you are a patient who has a specific genetic change related to your cancer, or if you are a relative of such a patient who may have inherited that change. Participants will be asked about their thoughts and feelings regarding genetic testing, and this information will help shape future care for leiomyosarcoma patients. Importantly, the study is currently recruiting, and it welcomes individuals of all genders.
Gender
ALL
Eligibility criteria
- • Inclusion LMS Proband
- • Actionable germline PV detected in the research context
- • Living
- • No prior germline testing for this PV
- • Able to speak and read English
- • Mentally competent
- • Age 18 or older
- • Relative of LMS Proband
- • 25-50% chance for having inherited the PV
- • No prior germline testing for this PV
- • Able to speak and read English
- • Mentally competent
- • Age 18 or older
- • Exclusion (both cohorts)
- • \<18 years
- • Unable to read or write
About University Of Utah
The University of Utah is a prestigious research institution known for its commitment to advancing medical knowledge and improving patient care through innovative clinical trials. With a robust infrastructure that supports a wide range of biomedical research initiatives, the university leverages its multidisciplinary expertise and state-of-the-art facilities to conduct rigorous clinical studies. By fostering collaboration among researchers, clinicians, and community partners, the University of Utah aims to translate scientific discoveries into effective therapies and interventions, ultimately enhancing health outcomes and contributing to the advancement of medical science.
Contacts
Jennifer Cobb
Immunology at National Institute of Allergy and Infectious Diseases (NIAID)
Locations
Salt Lake City, Utah, United States
Patients applied
Timeline
First submit
Trial launched
Trial updated
Estimated completion
Not reported