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Search / Trial NCT06912841

Deep Brain Stimulation (DBS) MatchMaker

Launched by BOSTON CHILDREN'S HOSPITAL · Mar 29, 2025

Trial Information

Current as of July 23, 2025

Enrolling by invitation

Keywords

Deep Brain Stimulation Dbs Movement Disorders Dystonia Genetic

ClinConnect Summary

Deep brain stimulation (DBS) is an effective treatment for childhood-onset dystonia and other hyperkinetic disorders, with emerging evidence supporting its use in an expanding range of monogenic movement disorders. While some conditions, such as TOR1A-related dystonia, are well-established indications for DBS, many rare and ultra-rare movement disorders are also being considered for treatment. However, individual centers often have limited experience with these conditions, leading to mostly anecdotal observations. Furthermore, the published literature is often scarce or not up to date.

To ...

Gender

ALL

Eligibility criteria

  • Inclusion Criteria:
  • Individuals of all ages with genetic movement disorders, who are undergoing or being considered for DBS treatment.
  • Exclusion Criteria:
  • Individuals who have not undergone DBS treatment.

About Boston Children's Hospital

Boston Children's Hospital is a leading pediatric healthcare institution renowned for its commitment to advancing child health through innovative research and exceptional clinical care. As a prominent clinical trial sponsor, the hospital leverages its extensive expertise in pediatric medicine to conduct rigorous and ethically sound research studies aimed at improving treatment options and outcomes for children. With a collaborative approach that integrates cutting-edge technology and multidisciplinary teams, Boston Children's Hospital is dedicated to translating scientific discoveries into practical applications that enhance the well-being of young patients and their families.

Locations

Boston, Massachusetts, United States

Patients applied

0 patients applied

Timeline

First submit

Trial launched

Trial updated

Estimated completion

Not reported